Sheyla’s Story

When I was 12 weeks pregnant we found out our son had T21. We were happy we were going to have some extra love. At week 18 we found out he had Ebstein’s Anomaly. The first thing they told us was that he wouldn’t make it to 40 weeks. I felt his first kick when I was 19 weeks, I felt like he was letting me know that everything was going to be ok. We made it to week 39. Having a C-section with my first son, I decided to go for a vaginal delivery; I was induced because of the risk with his heart. I was told as soon as he was out of my belly he would be taken to NICU but the doctor was kind enough to put him over me for about 5 seconds.

He was born January 27th at 7.05pm. He was connected to a ventilator, he had two heart catheters, an open heart surgery at only 2 weeks old, he was connected to an ECMO machine for 10 days and even got dialysis because he was retaining too much fluid. He was a fighter. My little angel passed on February 23rd at 5pm. It was the hardest decision my husband and I have ever made. His lungs got compromised because of his heart condition and his liver started deteriorating. We were told that there was nothing else we could do and that we needed to disconnect him from all the machines because he started feeling more pain and at one point the medicine wasn’t going to help him anymore.

27 days old, a fighter, and angel, my little Fabrizio, I got to hold him for the first and last time that day. Daddy and I didn’t want to let you go, we wanted to take you home but we couldn’t. Now you live with us in our hearts.

Now after almost to 2 years I found out I was pregnant. I had my rainbow baby on June 17 at 11:08 am. I am now able to hold him. I was able to leave the hospital with my son and I was crying when I did. I can’t describe the way I feel. I am so so happy to have my son with me, but at the same time I feel so sad that I wasn’t able to bring my Fabri home. What keeps me and my family happy is that we know Fabri is and will always be with us.

I want my rainbow to shine as much as he/she can.

Photos taken by Medhalit Rojas.

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